On average, it takes five years and consultations with seven different clinicians for an individual with a rare disease to receive a diagnosis. Even after diagnosis, effective therapies may not be available because the nature of rare diseases leads to challenges in developing treatments.
Access to accurate data about the diagnostic path, clinical course, response to therapy, and long-term outcomes is particularly critical for rare diseases because the knowledge base is often limited. Additionally, combining data from patients at different facilities can expedite the study of disease mechanisms and the development of novel therapies.
Forward Health Group provides solutions that identify, aggregate, and present relevant data from multiple sources. Health care organizations, patient advocacy groups, and researchers can benefit from increased understanding of the patient journey, improved efficiency of diagnosis, and accelerated evaluation of new treatments.